['I went for a short walk, so I'll run into people again'. Qualitative research on the participation of older adults with memory problems]. / 'Even een rondje wezen wandelen, want dan kom ik weer mensen tegen'. Kwalitatief onderzoek naar de participatie van ouderen met geheugenproblemen.

Many older adults who live at home face memory problems, which creates challenges for their participation in society. This may lead to social isolation and a lower wellbeing. In this qualitative study, we studied the physical and social participation of seven older adults with memory problems who live at home, to identify obstacles and coping strategies. Different research methods were adopted: 1) walking interviews, 2) travel diaries, and 3) in-depth interviews. Physical and social participation take place independently and in the immediate living environment. Participants experience several obstacles, which are highly impacted by the mode of transportation that they use: walking versus cycling. The results provide new insights on the strategies that participants develop to continue to participate. Fixed routes help them navigate, orientate and anticipate to traffic situations. Participating in activities for a short period of time is a strategy to make social participation less demanding. It is not the duration, but the experience of the activity that is important. The article concludes that older adults with memory problems exercise control in shaping their activities according to their personal needs, possibilities and surroundings. It is important that they are not only supported in avoiding risks, but also in developing suitable coping strategies.

Using the concept of activity space to understand the social health of older adults living with memory problems and dementia at home.

Globally as the population ages, the prevalence of dementia will increase. Simultaneously, there is a trend toward people ageing at home. Therefore, more people will be ageing at home with dementia, as opposed to institutional environments. In this context, there has been a recent shift in research exploring ways that people can live well with the consequences of the disease. As a part of this emerging research, the social and spatial aspects of the lives of people living with memory problems are becoming increasingly of interest. The aim of this article is to use the concept of activity space to examine the social health of older adults with memory problems and dementia who live at home. Activity space data were collected from seven older adults experiencing memory problems and living at home in the Netherlands. Using a mixed-methods approach, insight into their activity spaces were gained through walking interviews, 14 days of global positioning system (GPS) movement data, travel diary entries and in-depth interviews. The GPS data, travel diary data and interview transcripts were analyzed using a grounded visualization approach. Our findings show that participants interact independently in routine activity spaces but depend on others to participate in occasional activity spaces. Interactions within both these spaces contribute to the social health of older adults with memory problems and dementia who live at home. Additionally, participants used coping strategies and decision-making to maintain autonomy in daily life. The findings can inform dementia-friendly initiatives and social health care planning.

Experiences of home and institution in a secured nursing home ward in The Netherlands: A participatory intervention study.

Nursing homes have been criticised for not providing a home for their residents. This article aims to provide insight into (1) the features of home and institution as experienced by residents and caregivers of a secured ward in a nursing home, and (2) how interventions implemented on the ward can contribute to a more home-like environment. For this purpose, a participatory intervention study, involving both caregivers and residents, was carried out. We collected data through qualitative research methods: observations, in-depth interviews and diaries to evaluate the interventions over time. We adopted an informed grounded theory approach, and used conceptualisations of total institutions and home as a theoretical lens. We found that the studied ward had strong characteristics of a total institution, such as batch living, block treatment and limited privacy. To increase the sense of home, interventions were formulated and implemented by the caregivers to increase the residents' autonomy, control and privacy. In this process, caregivers' perceptions and attitudes towards the provision of care shifted from task-oriented to person-centred care. We conclude that it is possible to increase the home-like character of a secured ward by introducing core values of home by means of interventions involving both caregivers and residents.

New places of remembrance: individual web memorials in the Netherlands.

The creation of places of remembrance in virtual space constitutes a new ritual to commemorate the dead. The purpose of this study is to explore for whom individual Web memorials are meaningful places, who are commemorated, and whether they constitute a community of support. We analyzed 181 Dutch Web memorials and conducted content analysis of messages posted in four guestbooks. We found that parents, and in particular mothers, create Web memorials in remembrance of their deceased children. The memorials provide access to a community of social support, consisting primarily of strangers and/or people who have experienced a similar loss.

Expressions of private mourning in public space: the evolving structure of spontaneous and permanent roadside memorials in The Netherlands.

A visual content analysis of photos of 2176 roadside memorials in The Netherlands was undertaken together with 24 interviews with the people who constructed them to understand how they deal with traumatic death. Friends urgently need to memorialize the deceased and establish spontaneous memorials. They place meaningful objects at the place of death, not necessarily indicating the deceased's identity. In contrast, permanent memorials identify who died and re-embody that person and are primarily established by parents. By transforming the death site into a place of care, parents continue their role as nurturers. Differences in types of memorials are discussed.